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NF-nyhetsbrev oktober 2024
NF patients united

NF-nyhetsbrev oktober 2024

By Aktivitet NFFNF9. november 2024juni 18th, 2025No Comments
October 2024
NFPU Newsletter

Welcome to the Newsletter about the NFPU Online Magazine, where you receive regular updates about Neurofibromatosis.


Dear readers,


I’m happy to announce a new edition of the NFPU Online Magazine. In this October edition, we focus on NF1-and NF2-related eye and vision issues. 

We hope you will enjoy reading this edition.  Feel free to  give us feedback and suggestions!      

                

  Karin Hoogendijk

Chair of Neurofibromatosis Patients United (NFPU)

Our content

Eye-related symptoms

of NF1 and NF2

Are you affected by a Cataract or an Optic Pathway Glioma? WE look at NF-related eye issues in more detail!

Read more >

How smartphones help vision problems


Can Smartphones somehow increase vision? Yes! João Pimpão , an affect person, found apps that help people with low vision in everyday life.

Find out more >

Interview with 

Dr. Amadeo Azizi

Have you ever wondered who diveats NF1 patients with eye tumours? We know who does! The Ausdivian pediadivist Dr. Azizi has focused on NF1 and tumour diveatment and gives interesting insights into his work.

Find out more >

How to cope with…

Are you also affected by vision problems and sdivuggle in everyday life? The Dutch psychologist  Femke van Krimpen and an affected father give advice on how to deal with vision loss.


Read more >

Hero of the Month

We look for people with Neurofibromatosis that inspire us. This month, the Spanish boy  Rubén Carmona  is our Hero of the Month!


Read more >
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